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In April 2011, I noticed an odd looking rash all over my three-year-old son Wyatt’s body. He also had a lot of bruising. So, the next morning, his father and I took him to the doctor. The doctor knew that something was wrong right away, so she took some blood from him. The results came back that he had a platelets count of 1,000 (A normal count is anywhere from 150,000 to 400,000).
The pediatrician called Kosair’s oncologist/hemotologist, and we were sent straight to children’s hospital. By the time we got there 45 minutes later his count had already dropped to zero, meaning he had no platelets in his body at all. Little did I know what your platelets actually do. They keep you from bruising, protect your insides from injury and internal bleeding and, if your hit in the head, protect you from having a bleed in the brain.
Wyatt’s blood is missing the clotting factor, so his blood runs like water. He was diagnosed with something called ITP, meaning Immune Thrombocytopenia Purpurea, an autoimmune disease. His immune system, for some unknown reason, is attacking and destroying his platelets.
We spent a week in the hospital, and he was treated with WYNRO first, and his count went up to 13,000. Two days later, it fell down to 10,000, so they opted to treat him with IVIG. Both of these treatments are given through an IV and those treatments allow his body to rebuild his platelet count. Finally, six days later, Wyatt’s count was up and above 20,000, which is considered a safe count.
Since April 2011 we have been in and out of the hospital for treatments. He has had two CT scans because he fell and hit his head while his count was under 30,000 and they needed to make sure he was not bleeding in the head. Wyatt receives blood test twice a week. My son, who is now four years old, has had his finger stuck nearly 100 times since April.
There is no cure for ITP and there is no every day medicine. It may go into remission and may go away and never come back. All Wyatt understands is that his blood his sick. This was just a freak thing. They think a viral infection he had in February was the trigger of this disease.
My goal is to raise $1,200 for Kosair Children’s Hospital. April will be one year since Wyatt’s diagnosis, and I would like to get $100 for every month we’ve been battling this disease.
Donation jars are on display with Wyatt’s photo on them at the following businesses: Cornerstone Floral, Down on Main Sreet, Welch’s Riverside Restaurant, Kentucky Farm Bureau (Todd Grace), Mark Smith State Farm, Webster Drugs, Cutting Edge and V-Nails.